Related News
Home 禄 Metro 禄 Health and Science
Legislation, insurance urged for rare diseases
By Cai Wenjun |
February 28, 2011, Monday
|
Online Edition
Online Edition
SHANGHAI Medical Association today set up a rare disease diagnosis and treatment department to promote related legislation, research and insurance coverage.
Rare diseases are diseases that affect a small percentage of the population. In China, the incidence is 0.01 percent.
There are about 5,000 to 6,000 rare diseases, or 10 percent of all human diseases, experts said today, the World Rare Disease Day.
Most rare diseases are genetic and half of rare diseases appear early in life with many children showing symptoms upon delivery or within 12 months.
"It is urgent to set up a system to introduce best medicines and cover the medical bills of rare disease patients so they can afford good medicines and have a good quality of life," said Dr Li Dingguo, director of the rare disease department. "All medicines treating rare diseases are expensive."
According to the experts, the local government has made a plan to establish a foundation to cover the hospital expenses of 12 preventable and treatable rare diseases for local patients.
Genetic tests will also be conducted on couples and on fetus to provide early intervention and treatment to prevent children born with rare diseases.
Rare diseases are diseases that affect a small percentage of the population. In China, the incidence is 0.01 percent.
There are about 5,000 to 6,000 rare diseases, or 10 percent of all human diseases, experts said today, the World Rare Disease Day.
Most rare diseases are genetic and half of rare diseases appear early in life with many children showing symptoms upon delivery or within 12 months.
"It is urgent to set up a system to introduce best medicines and cover the medical bills of rare disease patients so they can afford good medicines and have a good quality of life," said Dr Li Dingguo, director of the rare disease department. "All medicines treating rare diseases are expensive."
According to the experts, the local government has made a plan to establish a foundation to cover the hospital expenses of 12 preventable and treatable rare diseases for local patients.
Genetic tests will also be conducted on couples and on fetus to provide early intervention and treatment to prevent children born with rare diseases.
- About Us
- |
- Terms of Use
- |
-
RSS - |
- Privacy Policy
- |
- Contact Us
- |
- Shanghai Call Center: 962288
- |
- Tip-off hotline: 52920043
- 娌狪CP璇侊細娌狪CP澶05050403鍙-1
- |
- 浜掕仈缃戞柊闂讳俊鎭湇鍔¤鍙瘉锛31120180004
- |
- 缃戠粶瑙嗗惉璁稿彲璇侊細0909346
- |
- 骞挎挱鐢佃鑺傜洰鍒朵綔璁稿彲璇侊細娌瓧绗354鍙
- |
- 澧炲肩數淇′笟鍔＄粡钀ヨ鍙瘉锛氭勃B2-20120012
Copyright 漏 1999- Shanghai Daily. All rights reserved.Preferably viewed with Internet Explorer 8 or newer browsers.
