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November 25, 2009

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Locked in his brain, man finally freed

For 23 torturous years, Belgian Rom Houben says he lay trapped in his paralyzed body, aware of what was going on around him but unable to tell anyone or even cry out.

The car-crash victim had been diagnosed as being in a vegetative state but appears to have been conscious the whole time. An expert using a specialized type of brain scan that was not available in the 1980s finally realized it and unlocked Houben's mind again.

The 46-year-old Houben is now communicating with one finger and a special touchscreen on his wheelchair.

"Powerlessness. Utter powerlessness. At first I was angry, then I learned to live with it," he said, punching the message into the screen during an interview with the Belgian RTBF network, aired on Monday.

Over the years, Houben's family refused to accept the word of his doctors, firmly believing their son knew what was happening around him, and gave no thought to letting him die, said his mother, Fina.

Over the years, Houben's skeptical mother took him to the United States five times for tests. More searching got her in touch with medical experts who put Houben through a special scan.

"We saw his brain was almost normal," said neuropsychologist Audrey Vanhaudenhuyse, who has worked with Houben for three years.

Breakthrough at last

The family and doctors then began trying to establish communication. A breakthrough came when he was able to indicate yes or no by slightly moving his foot to push a computer device placed there by the scan team. Then came the spelling of words using the touchscreen.

Houben's condition has since been diagnosed as a form of "locked-in syndrome," in which people are unable to speak or move but can think and reason.



 

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